How do we know we are coping? Are we coping? Has our normal become so abnormal that anyone looking in from the outside would be shocked about what our day to day lives are like? Is someone who cries every day coping less than another seemingly strong individual who is in fact tearing themselves apart on the inside?
It is a hard one to fathom, and an even more difficult one to admit to. What will people think of us if we admit that we are finding things tough and need help? Does it mean that we are rubbish parents or that we are great parents, aware that we do in fact need assistance? Do we really need help or are we making a mountain out of a mole hill which will eventually sort itself out? If we ask for help, who is going to provide that service and will it be someone who we feel comfortable about laying bare our families and emotions? Do we want to be judged at a time when we are already emotionally fragile?
I am sorry if this seems just like a list of jumbled questions, but it is these issues which we have been faced with this week in particular, with regard to our 5 year old son’s increasingly volatile behaviour. Whilst generally a complete sweet heart, he is becoming increasingly unpredictable which manifests itself into very aggressive behaviour affecting the whole family. Although at the moment he is relatively containable due to his age, the worry is that if this continues what happens when he is 16 and is able to put me on the reflection stair!? Yes, I know that it could well be a phase, but the trouble is our phases tend to go on for years rather than days. Then again, what if it is not a phase…
On a completely different note, met with our MP yesterday who has been really helpful in trying to get therapy sorted out for our daughter and her friend at school. The cogs are slowly moving and we are basically waiting for replies from several people who have been approached. I was disappointed to hear from her that she is uncertain that Friday's Every Disabled Child Matters Bill will achieve the 100 votes needed to pass the motion. The main reason for this is that apart from the financial implications, the Bill is being proposed by a Conservative MP and the Labour party don’t want the opposition to get the credit! Can you believe it! Please, if you have not done so already, contact your local MP and ask them to vote for the Bill - you could really make a difference.

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Reply #2 on : Tue February 20, 2007, 22:35:56
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Reply #1 on : Wed February 21, 2007, 20:21:47