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A Father's Story

Out and About in a Kaye Frame
By John on 23 Mar 2004
There's nothing wrong with a little curiosity from time to time. There's nothing wrong with the occasional question, "what's the frame for?", or "why does he use that?". But there's curiosity and sheer rudeness and unfortunately the latter sometimes predominates.

Paula and I were determined to make the most of our son's new found mobility, so everywhere we went we took him in his Kaye frame as much as possible. Apart from the fact that he regularly fell out of it, a problem solved by using a baby walking harness until he grew to big for it, the problems we faced were nothing to do with mobility problems. They were the idiots who would stop and stare, or whisper to each other as he passed. You'd often hear the words "zimmer" or "that looks fun", but as soon as you caught their eye the perpetrator would look the other way. I can only be thankful that this all occurred at a time in our son's life when he was too young to notice. Occasionally a more direct approach resulted in a question about the frame which were only too happy to answer, in the interests of education, but we were always aware that people noticed his frame rather than his handsome good looks or cheeky personality. The exception to this was on holiday in Crete, where we found the local people were exceptionally friendly and seemed to not notice his frame or other special needs. It was a wonderful antidote to the difficulties of life elsewhere.

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lisa lewis
Posts: 2
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Re: A Father's Story
Reply #1 on : Thu July 17, 2008, 20:59:58
i have the same problem my daughter has cerebal palsy and uses a frame as well as a wheelchair if she is having a bad day. peoples comments hurt but like your son she is a bit young to notice, untill now as she says why do people stare at me. just the other day while shopping as her legs are back in plater as is the norm for her every three months a little girl said to her mum why has she got two legs in plaster mum replied; oh she is very sick adults are worse than children if you tell a child what is wrong they just say ok do u want to play with us as mia has proved at her school by having many friends as mia now says im not sick i have cp thats all.lisa@bullyveiw

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