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20 Nov 2008 (Forum)
Re: concerns of daughter
20 Nov 2008 (Forum)
Re: concerns of daughter
19 Nov 2008 (Forum)
Re: concerns of daughter
19 Nov 2008 (Forum)
Re: concerns of daughter
19 Nov 2008 (Forum)
Re: concerns of daughter
18 Nov 2008 (Forum)
Re: concerns of daughter
18 Nov 2008 (Forum)
concerns of daughter
Failing to Deliver
on 30 Jan 2007
We have been so incensed by the information recently received regarding school based therapy provision for our daughter and our friend Maria's son that we have handed this blogspot over to Maria:

If you have a child with a physical disability you will know that physiotherapy makes a big difference. That is certainly the case for my son. It was partly for this reason that I fought for him to get a place at a specialist pre-school and school.

For a year he has been really happy in his setting and made great progress.

Imagine my distress when I was informed that there is not sufficient therapy provision for my son from next September. Not only that, but that this will also be the case for a number of other children at this supposed specialist school and for other older children.

Without boring you with the details of the situation, it is clear that there is both a crisis in funding for essential therapy for children with a disability in Dorset, but also a clear disregard for how important these services are to children with a disability.

While I applaud the principles that Government and Local Authorities flaunt - such as Every Child Matters - there seems to be an inability to implement. It is only implementation that is going to make any difference to any child's life. I am sick and tired of being fobbed off with good intentions when nobody is able to actually deliver on what is required.

I would like to hear if other families in Dorset and other parts of the UK have struggled to get adequate therapy provision for their children. Also any hints or tips on how to knock some sense and action into the right people!

Maria
Please let us know your point of view on this topic in the comments below. We're hoping that our MP will support this case so the more feedback the better.

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Sheeps
Posts: 26
Comment
Re: Failing to Deliver
Reply #8 on : Tue January 30, 2007, 22:57:50
Just wanted to give you a couple of tips here to make sure you get whats needed.

Try and get the needs all individually listed in detail in the educational statement of need.

If there is a partnership with parents in your area make contact and they can help you put on the pressure too.

Document everything!!!!!!!!!!!

KEEP FIGHTING!!! I hate to tell you but its a fact unless you fight for yours and your childs needs it simply wont happen as all the authorities are constantly being told to make savings and its those who dont make a fuss that dont get the service.

You may guess from this I work in local authority though not in your area and often with special needs. Best wishes Sheeps
weeherdy
Posts: 26
Comment
Importance of a statement
Reply #7 on : Wed January 31, 2007, 21:31:16
If she has a statement of SEN (which she must if she is at special school) then it should detail her therapy needs too, in part 3, where there is then a duty for the LEA to make sure they are provided. My son's does (and he's at m/s school). And at one time they had to buy it in cos the local HA couldn't provide it.
I know they try and fob you off that therapy should be in part 5 (and so not anyone's legal responsibility) but you can find ways, esp. for OT and SALT to show that these are clearly educational needs - ie they impinge on her education.
You probably know all this but worth speaking to IPSEA or Network 81 too (sorry no web addresses but just google!)
john
Posts: 1
Comment
Re: Importance of a statement
Reply #6 on : Wed January 31, 2007, 21:43:57
Thanks for the info. We'd spoken to IPSEA before but I hadn't heard of Network 81 (www.network81.org/), so we'll give them a try. Useful information about trying to get the therapy needs in the right section of the statement though!
weeherdy
Posts: 26
Comment
Re: Importance of a statement
Reply #5 on : Wed January 31, 2007, 21:45:38
Can't stress enough though how vital it is to get all needs spelled out and addressed in the right parts of the statement. this of course means getting decent reports, which can be a problem in itself, but even if the school or LEA are providing what you need it should still all be written down cos I have heard too many tales of provision suddenly stopping or reducing and the parents not having any legal grounds for complaint cos it was not properly laid out in the statement.
colin shields
Posts: 26
Comment
failing to deliver
Reply #4 on : Wed January 31, 2007, 22:42:50
Could write a long winded reply to this but can sum up my feelings in one word, DIGUSTED.
The Local Authority, the NHS and everyone else involved should be ashamed of themself.
dogposhpaws
Posts: 26
Comment
Similar problems in Hampshire
Reply #3 on : Thu February 01, 2007, 07:19:00
It's the same in Hampshire. A child who lives in the N.E. of the county, attends a "special needs" school in the south of the county, an early morning and evening trip of an hour and a half by specially adapted car, also has the same problemas you have with the different health authorities.What makes me cross is that just over the county border in Surrey(less than 6 miles from their home) is a perfect school for this child, but because it's a different education authority, the child cannot go there.
The system stinks. We can give the child home education, and therapy sessions at home, but the authorities won't allow us to do that. Why? because I'm disabled, and apparently "incapable". Yep, the system stink.
robn
Posts: 26
Comment
disabled people are now treated worse then illegal immigrants
Reply #2 on : Thu February 01, 2007, 07:20:05
We only have a few SEN schools in my area, most are old and really poor for the job they are intended to do, we still use a Nissan type hut for this type of education. I work an hour a week in one, voluntary and they have a play ground the size of a stamp, now thats gone, a playing field you might grow two onions on, and yet the teachers try. We fight like hell each year to keep it open. Children travel up to 40 miles away to come to this school, but the staff are great hard working, But after a while they them selves say is it worth all the trouble.

I think it is the same all over the country which makes a mockery of Blair and Labour's DDA, disabled people are now treated worse then illegal immigrants at least they have new jails.
TINA TAYLOR
Posts: 26
Comment
THERAPY
Reply #1 on : Tue February 06, 2007, 17:03:03
SOME CHILDREN NEED THERAPY .IT SHOULD BE ON THE STATEMENT.GETTING IT IS HARD.IT TOOK ME FIVE YEAR. THEN YOU HAVE TO MAKE SURE HOW MUCH AND FOR HOW LONG.

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